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Category: patient advocacy

Federal Officials Seek To Stop Social Media Abuse Of Nursing Home Residents

Federal health regulators have announced plans to crack down on nursing home employees who take demeaning photographs and videos of residents and post them on social media.

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Twitter Social Media is an Effective Tool for Breast Cancer Patient Education and Support: Patient-Reported Outcomes by Survey

Despite reported benefits, many women do not attend breast cancer support groups. Abundant online resources for support exist, but information regarding the effectiveness of participation is lacking. We report the results of a Twitter breast cancer support community participant survey. The aim was...

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#HospitalGlam: The Chronic Illness Social Movement

Taking shame out of being in treatment one selfie at a time. Meet Karolyn Gehrig, the queer disabled artist who's transforming her frequent hospital visits into artwork, a hashtag, and a social movement.

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Posted:
Feb 25, 2015

Author:
Emily

Tags:

As I lay dying

I am dying, literally, at my home in Hollywood, of metastatic breast cancer, the only kind of breast cancer that kills. For six years I've known I was going to die. I just didn't know when. Then, a couple of weeks before Christmas, a new, deadly diagnosis gave me a deadline. No doctor would promise...

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Having Parkinson's since I was 13 has made me an expert in self-care

When I was 13 years old, I experienced the first symptoms of what almost 20 years later would be diagnosed as Parkinson’s disease. Getting Parkinson’s in your teens is pretty unusual, if not rare. Nevertheless, I am happy that I wasn’t diagnosed with an “old person’s disease” in my teens.

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The Penn Medicine Center for Health Care Innovation engages interdisciplinary teams to reimagine health care delivery for dramatically better value and patient outcomes.

The Leonard Davis Institute of Health Economics (LDI) is Penn's center for research, policy analysis, and education in health systems. Its 200 Senior Fellows analyze the medical, economic, and social issues that influence how health care is organized, financed, managed, and delivered across the U.S.

We are passionate about pursuing impactful research and eager to explore opportunities that will enable a culture of social media and health innovation at Penn, Penn Medicine, and beyond.  Have an idea for a project?  Interested in collaboration?  Click here to learn more about how to contact us.